2002 Official Parent's Sourcebook on Fragile X Syndrome: A Revised and Updated Directory for eBook

The 2002 Official Parent's Sourcebook on Fragile X Syndrome: A Revised and Updated Directory for the Internet Age

by ICON Health Publications

The 2002 Official Parent's Sourcebook on Fragile X Syndrome: A Revised and Updated Directory for the Internet Age

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The 2002 Official Parent's Sourcebook on Fragile X Syndrome: A Revised and Updated Directory for the Internet Age Summary

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to fragile x syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on fragile x syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Fragile X Syndrome: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Fragile X Syndrome; Chapter 4. Patents on Fragile X Syndrome; Chapter 5. Books on Fragile X Syndrome; Chapter 6. Multimedia on Fragile X Syndrome; Chapter 7. Periodicals and News on Fragile X Syndrome; Chapter 8. Physician Guidelines and Databases; Chapter 9. Dissertations on Fragile X Syndrome; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Child's Rights and Insurance; ONLINE GLOSSARIES; FRAGILE X SYNDROME GLOSSARY; INDEX. Related topics include: FRAXA, Marker X Syndrome, Martin-Bell Syndrome, X-linked mental retardation, X-linked Mental Retardation and Macroorchidism.

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