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| This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to cystic fibrosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on cystic fibrosis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Cystic Fibrosis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Cystic Fibrosis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Cystic Fibrosis; Chapter 5. Patents on Cystic Fibrosis; Chapter 6. Books on Cystic Fibrosis; Chapter 7. Multimedia on Cystic Fibrosis; Chapter 8. Periodicals and News on Cystic Fibrosis; Chapter 9. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. NIH Consensus Statement on Genetic Testing for Cystic Fibrosis; ONLINE GLOSSARIES; CYSTIC FIBROSIS GLOSSARY; INDEX. Related topics include: fibrocystic disease of pancreas, mucosis, mucoviscidosis, pancreatic fibrosis. |
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eBooks > Titles > Authors > Health & Self Improvement > Health & Fitness > ICON Health Publications > The 2002 Official Parent's Sourcebook on Cystic Fibrosis: A Revised and Updated Directory for the Internet Age
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